As an advocate for children this is an article that explain how many fall through the cracks… its a battle that I struggle with at schools and explaining my daughter to MANY people. …
Advocate for yourselfAdvocate for your childAdvocate for your loved onesIf you don’t… who will?
Nov 3, 2014 — As you know, since January 1, 2006, CMS has classified the Baha system as an osseointegrated Implant (prosthetic implant), meeting the requirements of Medicare’s prosthetic definition for coverage and payment. On July 2nd, a proposed ruling was issued to reclassify osseointegrated implants as hearing aids which are not covered under Medicare. In response, we all executed an aggressive initiative to educate government leaders and the general public about this life-changing technology and how it differs from hearing aids.
As a direct result of our collective efforts across the industry, we were notified that CMS will continue covering osseointegrated implants as prosthetic devices. This means that Medicare recipients will continue to have access to and coverage for Baha technology (i.e. NO CHANGE TO CURRENT COVERAGE). The decision does not cover non-osseointegrated hearing solutions.
This positive outcome would not have been possible without the additional efforts put forth by many of you who signed the petition, spread awareness amongst your colleagues and patients, posted comments to CMS and talked with members of Congress. Your efforts are greatly appreciated; thank you all.
*remember that “good enough” should never be “GOOD ENOUGH”Advocate for yourselfAdvocate for your childAdvocate for your loved onesIf you don’t… who will?
I feel so renewed and energized after attending workshops at Oticon Medical’s patient advocacy conference this past weekend! (Forgive me if this post rambles a bit)
I’ve always been a ready advocate but…. I didn’t always do it well. I’m getting better at it.
One of our workshops posed the question “what do you wish you could advocate for” And oh wow, there are so many things… but where would I start? How do I get the ball rolling so to speak?
I live in a small state and would like more local groups and activities for the hearing loss community. I feel like we NEED groups for our kids to learn to speak up and advocate for themselves…. but then we need one for the parents who havent yet started advocating for them yet. I’d love it if there was a group for learning to advocate insted of “winging it” (yes, that’s what I do)
So lets start here! Yes with this blog post….
Tell me what you advocte for and HOW do you do it? (It doesnt have to be hearing related….
I’m advocating for more interaction on my blog…. and this is how I’m starting…..
*remember that “good enough” should never be “GOOD ENOUGH”
Advocate for yourself
Advocate for your child
Advocate for your loved ones
If you don’t… who will?
So your worried about interaction between hearing and not quite hearing. If you are hearing impaired the best thing is be upfront…. Dont pretend to hear. you might miss something important.
Ask the best way to interact
Have paper and pencil ready
Write in short simple sentences
Watch facial expressions, eye gaze
Repeat if needed
Be patient in communication
Look directly at the person, keeping your hands away from your face and face toward the deaf person
Be friendly; they merit the same respect as anyone else
Don’t assume communication is occurring correctly (nodding does not always mean they understand or agree)
Don’t pretend to understand if you do not.
Don’t exaggerate your mouth movements.
Don’t have objects in your mouth or cover your mouth while speaking.
Don’t speak to a deaf person with your back to a light, window, or mirror.
Do not refer to them in third person as if they was not present
And drop the word ‘NEVERMIND’ from your vocabulary
Advocate for yourself Advocate for your child Advocate for your loved ones. If you don’t… who will?
Is there a connection with hearing loss and domestic violence? I’ve recently learned studies say yes, but the reasoning seems to vary. I’ve recently decided to make it my mission to try to find answers, raise answers, and try to help anyway I can.
For me it was bad from the beginning and only got worse after getting implants to hear better. Or maybe it seemed worse because I was more aware…. I dont know. But no one deserves to be treated sub par and NEVER jugde based on one experience.
Does anyone else have answers, suggestions, or expierence? I WANT TO HEAR FROM YOU!
Advocate for yourself Advocate for your child Advocate for your loved oneself. If you don’t… who will?
***DEAR FRIENDS THIS IS OF EXTREME IMPORTANCE!
Access to BAHA technology is being threatened by a proposal to exclude coverage under Medicare. Please pass this along to everyone you know and feel free share.If this comes to fruition, it would be a devastating blow to our community. Although Medicare is a small part of the global market for bone anchored devices, removing bone anchored systems from it would open the door for private insurances to follow suit and also drop coverage.We all know firsthand how life-changing BAHA technology is, so please take a few seconds, sign the petition, and forward to friends and family.https://www.change.org/petitions/centers-for-medicare-medicaid-services-dept-of-health-human-services-continue-coverage-for-the-cochlear-baha-implant-system-a-life-changing-hearing-solution